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New Jerseys: Raise One For Anne 2020

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For this year we're going to do one long/very long ride each month from May - September. We'll release the ride calendar later. Today, we're offering you an opportunity to make a small donation and buy a sweet new cycling jersey to support our cause! These jerseys will be made by Owayo. We've used this company in the past and the product quality is great. Nice fit, a bit on the snug side so choose your size wisely, and excellent finish. The women's jersey will be a 3/4 zip(in line with Lisa's preference) and the men's a full zip. Your cost will be $100 plus shipping. Any difference between my cost will be donated to The Epilepsy Foundation's SUDEP Institute. I will absorb all shipping costs from the manufacturer to me. Delivery time from Owayo is 4-6 weeks. Here is a link to their  Size Chart . I do recommend measuring if at all possible. Please email me, seanlisa@gmail.com, if you would like to order a jersey. If you know my phone number, you ca...
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Unofficial kickoff on a chilly morning in KY

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On April 21st, Lisa and I unofficially kicked off the Raise One For Anne Tour by participating in the 100km Red Bud Ride in London, KY. It was a Sunny yet brisk morning(38F!) when we set out from downtown London for a tour of part of The Daniel Boone National Forest. Dressed like bob sledding Eskimos we were off with the stiffness from sleeping in a hotel bed and the morning chill. The Red Bud Ride presented us with about 3000 ft of climbing in a day. For perspective, I can ride the same distance near Columbus and barely crack 1000 ft. But Raise One For Anne isn't about doing things because they are easy. The people who live with epilepsy don't have easy lives. We dealt with the early rollers and found the first SAG station about 20 miles in to grab a snack, fill up water bottles, and get rid of our morning coffee. We had ditched our wind breakers but still were all but covered from head to toe as we warmed our legs back up and headed for the days biggest challeng...
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Challenge

 Like most neurological disorders/diseases those who live with them face constant challenges. The one in 26 Americans who have been diagnosed with Epilepsy are no different. They have no way of knowing when their next seizure might come. Even if their seizures are well controlled with medication, the medications can make you feel like "you are not you". I know Anne struggled with this at times. The medication, of course, can be very expensive. Those with frequent enough seizures often cannot obtain or lose their license to drive a car. That makes them reliant on public transportation or friends and family to take them to work or complete everyday errands most of us take for granted. The hours and days post-seizure can be a blur as their brain tries to put itself back together. Frequent seizures can also make sleep difficult and lack of good sleep can increase frequency of seizures.  These are just the challenge I know about from Anne's 25 years of dealing with seizures be...
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